Day 61. A child has died from Duchenne Muscular Dystrophy

I am so sad and on the brink of grabbing a bottle of wine.

While I was with my son in the hospital recovering from spinal fusion surgery whom also has DMD, I met a mom who was a fellow FB friend (we met through the dmd community). Her son was admitted due to heart failure.  Her son died this morning. 😥

My heart is aching.  I don’t want to go through this myself one day.  I cry for the poor sweet brave momma!

Lord help us.

A picture with sweet Joshua just one week ago. 😥  RIP baby.  Run, run fast towards our creator in heaven and watch over us as we mourn you.


4 Replies to “Day 61. A child has died from Duchenne Muscular Dystrophy”

  1. Dear Light,
    I am so sorry for you and your family to loose your friend. You have so much to carry. My candles are burning for him, your children, you and of course his family. Hang in there.
    I can imagine that a bottle of wine is calling you right now but I do not think it will improve how you feel. And I can only imagine that you would regret drinking very much in the morning. 😦
    A very long, long hug,


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